The Burrows Hill Foundation to Fight Friedreich’s Ataxia was established to raise public awareness of FA, to raise money for research to find a cure for FA and assist those affected by FA. We are a 501(c)(3)

Rolf Hill and Katie Burrows are the proud parents of three amazing daughters who seemed limited only by their imaginations – spirited, empathetic and intellectually curious. But when Rolf and Katie became concerned about their oldest daughter’s decrease in coordination and balance, it led to a November 2015 diagnosis they never expected for a disease they had never heard of – Friedreich’s Ataxia (FA). A rare, debilitating, life-shortening, degenerative neuro-muscular disease that affects 1 in 50,000 people, FA threatens an uncertain future. Symptoms include a loss of coordination (Ataxia) in arms and legs, energy deprivation and muscle loss, slurred speech, vision impairment and hearing loss, aggressive scoliosis, serious heart conditions and diabetes.

Less than one year later, and now with the experience and ability to see the most minimal indications of FA, Rolf and Katie grew similarly concerned about their youngest daughter. In October 2016, genetic testing confirmed that she also has FA. While each of their daughters is strong in spirit, they know that there is much work to be done. With immeasurable and unwavering support from their friends and families, Rolf, Katie and their girls are committed to helping other families better understand FA and find a cure.

With approximately 9 ongoing clinical trials, hope in the FA community has never been greater. Doctors and researchers no longer say “if we find a cure,” they say “when we find a cure.” Rolf, Katie and their daughters would be forever grateful for your help in finding a cure – with more funding for research and clinical trials, they hope to speed it up!

A Night to Fight FA – Round 3

2017 Financial Breakdown
Total Amount Raised: $181,023

Where Your Money Went in 2017

THANK YOU! During the first full calendar year The Burrows Hill Foundation was able to raise over $181,000.  Of this money, more than 60% went to FARA to fund research, approximately 23% was provided as grants to those affected by FA, 16% was used to hold A Night to Fight FA and less than 1% was used for administrative expenses.

Friedreich’s Ataxia Research Alliance

fullsizerenderFARA’s Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.